Monday, March 22, 2010

A Short Version of the Intended Post!!!

How frustrating....I had a super long post all about today, and with the touch of one wrong key, it's gone. Grrr!! I'm completely disappointed because I don't have the time to redo it, nor do I have the brain power to remember everything I wrote. But maybe there's a reason for this too; in any case here are the basics.

Last night was a really bad sleep for Nate, awake from 1:30 to 4:30am, awake for the day at 6am, with no naps today.

Chest x-ray (lungs still wet), two echos - one on the dopamine and one off, appeared to have the same function - although very difficult for Nate, requiring 3 separate doses of sedatives. Hopefully moving to the cardiac ward tomorrow, although we will start in an intermediate care area. Still need to work on fluid on lungs and balancing meds.

Today Nate looked like a sick boy....till now he's looked like a totally healthy boy (which he is) who just happened to have heart surgery. I could see it in his eyes today, looks like he's been through a few too many storms. Praying that his sleep tonight will provide the rest that his body needs to recover and that his appetite would improve tomorrow. We had to give him chloral hydrate to fall asleep tonight. It was hard to do that but after being awake for 15 hours and only sleeping 5 hours last night, he was overtired and would not allow himself to give in to sleep.

God is giving us the strength we need for each day. Sometimes it feels like there is no way you can make through a hard moment, let alone all the other 'moments' that are yet to come in the day. But just like God doesn't give you more than you can handle, He also gives just what you need to make it through each day.

We've been here 2 weeks now - longing for home and Brady. Although when Don called him today, he made my sister, Bonnie, bring him the phone so he could keep playing while he talked to his dad. Yes, he's doing just fine.

Well, that was abbreviated, and I'm still kind of annoyed. And here's a quick disclaimer. Don was reading the blog, catching up on a few posts and pointed out several spelling and grammar issues. Now, I am anal about spelling, but here's the deal, I haven't been taking any time to proof these posts and I'll admit my brain is usually in a couple of places at once!! So as humiliating as it is, that's just the way it is right now!!
This is a real smile....I've been waiting! Praying for many more in the coming days!

Your prayers, emails and comments here have been an amazing life line for us. I'll never be able to thank you enough!!

Here are a couple of pics that I couldn't post earlier since the orientation was wrong.

These were taken on two of the surgery dates, that were eventually cancelled. Don't you love the hospital jammies?

Hard to believe Nate hasn't walked in a week. Can't wait to be back home!


Heather said...

You all continue to be on my heart and mind so much!!
I hope your next post is about being out of ICU!
Love & Prayer,

Nikki said...

We are praying for you! I completely understand about losing a post - SO frustrating!!!! Thanks for all the updates!

Karen said...

The two week point is hard. I remember having a difficult time at that point with Madelyn and her CDH. All I can say is , just hang in the there and everyone is praying for you and Nate.

Anonymous said...

Thanks for keeping us up-to-date. I had assumed that your blog would be blocked at work but yesterday I tried it and it worked. I could show my co-workers Nate's pictures - they all fell in love!
We are keeping you in our thoughts and prayers.

Anonymous said...

Thanks for the updates - I can't imagine how long these two weeks must feel already. We're praying for you and hope you get home soon!

Terry D.

Anonymous said...

These pictures speak volumes about the challenges and hurdles you've already faced and overcome, and those you are still going through.

We don't really know each other, aside from bumping into each other in church, but I want you to know that you continue to be in our prayers. We are moved by your experience as parents of young children ourselves. Our hearts go out to you.

Marilyn(and Ian)

Anonymous said...

Carole, I ran into your mom today at Girls Aloud. We were talking about how Nate was doing. Please know that you are in our thoughts and prayers continually. Thanks for the updates on Nate and your situation there. Praying that his recovery takes a giant leap forward and you can come home soon.

Anonymous said...

I have been keeping you in my thoughts and prayers.

Every day I come home from work and I have to check your blog to see how things are going right away.

Hang in there, trusting that the God who made your yesterdays, will be in all of your tomorrows.