Today was a bit of a back and forth day. The team thought because all of Nate's stats were really good they would discontinue the dopamine and captopril now so they could do the echo right away tomorrow.
A little ways into the day we started running into two other issues, that being increased heart rate and respiratory issues becoming evident. It's such a fine balance with the medications he is on right now and how they affect each other....it's so complex - I don't really know how much detail to go into. Simply put, changing one of the diuretics from IV to oral has increased how wet his lungs are. But going back on the IV was decreasing his potassium. Increasing potassium on IV would also increase his fluids. Today's chest x-ray was poorer than yesterday. This respiratory issue is not connected to his heart function directly but obviously they do impact each other.
So....back on dopamine and captopril. Waiting for heart rate to decrease, taking potassium orally (really yucky, the nurses and doctor tasted it and made me too, just to know why Nate would react to it). Two days ago his heart rate settled into a nice range between 100-115. After stopping the meds today it was staying in the 135-145's. Unsure right now if we need to kind of 'start over' with the dopamine to have it running continuously for a number of days. We'll get more details tomorrow. For now the priority is getting Nate balanced.
His day was a lot better today - in large part thanks to an enema!! It had been a week if you need to know! He has become a pretty picky eater so at this point we're just trying to get calories in! He had more positive interaction with us today which was so nice. Our nurse even commented that this must be more like the Nate we know. And speaking of the nurses - I have been so amazed with the very smart(!) and caring people who each day put so much into caring for these little ones!!
Today was also a day which exposed me firsthand to some of the very sad realities of life in ICU. It certainly put things into perspective. Everyone in the ICU has a story and when paths cross it is amazing how we can open up to each other. I know God places us in situations for a reason and can use us where ever we are, even if we don't know how the story ends.