Sunday, April 28, 2013

Day 7 - evening

The cardiologist was in, and in consultation with the child thrombosis team, they've come up with a plan. The hope is that tomorrow morning's INR level will have increased enough to discontinue the enox injections, and continue on with Coumadin only as the anticoagulant. Nate would be VERY pleased to not have those needles twice a day any longer ( although I know there are some pretty cool kids who do these injections and they should get gold medals!!). Anyway, if thrombosis is good with his numbers, his blood work is good and the morning echo shows good function, no fluid, etc.......we could be flying home tomorrow, skipping the whole transfer to Winnipeg and just discharging directly to home. They figured that since there was no way we'd be transferring today, the best idea would be to see this through to the end here. I feel good about this idea. We will still need to be tweaking all of his meds once we get home, but a drive in to Winnipeg sounds a lot better than staying here. And the sooner we get home, the sooner we can get meds that Nate will take without issues.
Not being hooked up for his vitals at home will feel a little unnerving. There is comfort in taking a peek to check his o2 sats, heart rate and rhythms...but I know a pretty amazing Physician who has been in control since the very beginning. So to worry (although normal!) is not what I need to do. Giving up that fear and worry is something that we all need to do!
Nate is calling me over so it's time to snuggle with my little man. And as Brady said today, we hope to 'hyperspace back home' tomorrow !


Anonymous said...

He looks so good in this picture Carole. Obviously recovering. So glad you can aim for home where all is more normal for Nate, and meds made by "Dean". Still praying for good transition and continued healing. Hugs!!

Carole Hiebert said...

Oh my goodness. Apparently autocorrect and a lack of sleep got me on this one. I should have proofed it, as spelling and grammar are kind of my thing. Oh well that's what you get for not sleeping for a week.