tag:blogger.com,1999:blog-9007308646939824365.post7699748377669373835..comments2023-05-10T02:36:45.261-05:00Comments on Big Brady & Lil' Nate: All DoneCarole Hieberthttp://www.blogger.com/profile/13068991767990336530noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-9007308646939824365.post-37076486607697350322012-11-16T21:03:21.065-06:002012-11-16T21:03:21.065-06:00Hi,
My name is Kathryn and my son Jackson has CC...Hi, <br /><br />My name is Kathryn and my son Jackson has CCTGA just like your son. I have been searching for another family that is dealing with the same issues and until now have not been able to find one. Could you e-mail me a way to connect with you? Like your e-mail? Here is a link to our blog:<br />http://fightingforjacksonelliot.blogspot.com/<br /><br />We have connected with so many heart families in the past 2 years, but have never been able to reach out to another patient with the same diagnosis. You can contact me through the blog or at elliotfamily@Hotmail.com. <br /><br />Looking forward to hearing from you and being able to share some of our journey too!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9007308646939824365.post-26065119384715218762012-10-11T11:57:58.901-05:002012-10-11T11:57:58.901-05:00Hey Carole,
Catching up on your blog today and jus...Hey Carole,<br />Catching up on your blog today and just had to tell you....Thomas had his heart cath in June. Everything you described mimicked our own experience. Right down to bumping into Linda. What are the chances of that?!.....We thought we were in the clear after the valvuloplasy. Aortic valve looks good....but at the followup appt. we were told we are now contending with a dilatation of the aorta. Not nearly as serious as Nate's condition but we are hoping we will be spared a trip to Edmonton as well. Your faith is an inspiration to many who follow your blog. Thank you for sharing your journey.Esthernoreply@blogger.comtag:blogger.com,1999:blog-9007308646939824365.post-1888733803046253822012-09-26T16:04:18.551-05:002012-09-26T16:04:18.551-05:00Lovin' that beautiful smile!!!Lovin' that beautiful smile!!!Rachelnoreply@blogger.com